Thursday, October 27, 2011

Baby Adventures: 26 Weeks..

REMINDER: Only 4 more days until my giveaway ends! ツ And also, I just want some people to be aware that the #1 rule is to be following me publicly through Google Friend Connect, everything else is only extra entries. Once the generator picks a winner and that person hasn't followed the rules/ or cheated, a new winner will be picked. Thanks, everyone!!! 

OMG. It is SUPER late and I am on the computer blogging. This is the pain of taking naps and waking up too close to my actual bedtime. Ugh. And I have to wake up and go to a doctor's appointment at 9am. It's not even my OB/Gyn, I have to see a rheumatologist. I'll tell you why in a second. I should get to sleeping, but I think I'll finish this post first, since a lot of people have been asking about my pregnancy update and baby bump pictures! (◠‿◠)
 There you go! LOL, my big baby bump at 26 weeks! 

Oh, and if you didn't read my previous posts, it's a BOYツ His name is Ethan 태양 Yi. Man, this little guy sure is moving around and hiccuping a lot. It feels like he's doing cartwheels in there. I can't help but smile every time I feel even the slightest movement from him. But's annoying how often I need to go pee!!! GAH! Every 30 minutes feels like I've been holding it in for 5 hours! My belly is starting to itch a little. I need to remind myself to get some cocoa butter and vitamin e oil. Awww, he's moving as I am typing right now too! Ok, I need to get some sleep, so let me do a little venting..

 Still no problems or stretching with the tattoo! 

Being pregnant with my condition: 
Let me tell you, it SUCKS. I was diagnosed with Lupus when I was about 17 years old and you have NO freaking idea of the physical and mental hell I went through. It hurt even more because I saw what it was doing to my family, so I always tried to stay chipper and positive. They say this condition can skip many generations, which is true, because not anyone in my family that anyone knows of had it. I will definitely be making a LONG separate post about my experience and hopefully it will help raise some awareness. It took a YEAR for someone to finally diagnose me, only because my body finally was about to give up and I was on my so-called "death bed" (more details later). 

You can look it up, I don't feel like explaining what is it, but just know that every case is different. I was in the worst shape, because they took so damn long to figure out what was happening. Unfortunately, there is no cure, but lupus patients are very capable of leading healthy, normal lives. We just have to be caution with certain things or environments. I'm "suppose to be" taking specific meds for the rest of my life, but I'll get into specifics later. 

Anyways, they advice women with lupus NOT to get pregnant because of the all the risks to the mother AND the baby. Now, this doesn't mean we cannot have a healthy pregnancy, it only means there are risks that we should be aware of. Now, why didn't this worry me??? 

My specific case of lupus was rare, I guess. So my doctor wanted me to undergo some procedures: chemotherapy and the injection of an experimental drug (that could possibly lead to the cure, I think?). They had told me to think long and hard about it before a decision is made because this would basically eliminate almost any chance of bearing children in the future. I was young at the time, having kids was the LAST thing on my mind, so I did it. 

So you can imagine our surprise when we found out about our little miracle. Anyways, I'm rambling.. Let me tell you the frustrating part of being pregnant wtih lupus: all the doctors you have to see! I can't just have one ob/gyn like a normal person, I have to see 4 different doctors. Ugh... But that's not the stressful part. I have to see certain doctors before I see the other doctor. Confused? Let me break it down:
  1. My OB/ Gyn wants me to see specialists at Maternal Fetal Medicine, so they may closely monitor my baby to see if it's in any danger or risks because of my lupus. My OB monitors me and my overall pregnancy. MFT monitors baby and everything else happening within my womb. 
  2. Maternal Fetal Medicine wanted to see me in September, but I cannot see them without seeing a rheumotologist first. I haven't seen a rheumotologist in a LONGG time and I called the one I used to see, but they claim not to have any of my records. So now I have to start from scratch. 
  3. No new rheumotologist will see me WITHOUT a referral from a primary care physician. I haven't seen MY PCP in the same amount of time I haven't seen my rheumotologist. I called my previous PCP and they TOO claim not to have my records.. WTFFFFFFFFF is going on??!!!
  4. So I make an appointment to see ANY primary care doctor at the clinic that my insurance plan goes through and they schedule me for a month later, even know they told them my whole situation. I even explained that I ONLY needed a referral and didn't need to see anyone for any health issues.
  5. I finally go my the appointment at the clinic, wait 2 hours AFTER my scheduled time and finally a man leads me to an office, takes my insurance info, and then leads me to the appointment desk. The receptionist tells me she can schedule me to see a PCP in another month. WTF??!! Why did I even come here for an appointment if I wasn't even seeing a doctor?? I'm furious and stressed beyond belief at this point and start crying at the counter. I re-explain my situation and tell them I need to see someone ASAP, because by the time I get the help I need, this baby will already be due. She squeezes me the following Monday to see someone. 
  6. I come in Monday morning, wait another 2 hours, then another 30 minutes inside the check-up room, doctor finally shows up and types me up a referral and tell me to call them if I don't hear anything in a week. 
  7. Nothing. So I call, they tell me they sent the referral to a hospital in Seattle and to call and make an appointment. I call. They claim to have gotten nothing. I call again a few days later. Still nothing, even thought I myself have the paper stating I have 4 approved visits with them, and they say it doesn't matter if I have it, because they need a referral from the clinic. 
  8. At this point, even the nurses and my OBGYN are making phone calls and going out of their way to get all this moving along, explaining to them that they are keeping me from seeing the most important people for my pregnancy. 
  9. I call the Seattle hospital again a few days later and they tell me they got my referral.. BUT, it will take a few days to review and to decide if they will take me as a patient or not.. WTF.. Here we go again.
  10. Then I get a call from them, telling me I need to send over my lupus records. I explain for the bazillionth time that they don't have my records and I need to be seen as a new patient. They tell me the only way to do that is have the clinic send over another letter stating I have lupus and that I also need to get blood work done. <--That would have taken another couple months.. Omg..
I only NEED to see my OBGYN & MFM, but this whole process is keeping me from getting the help. We still don't even know the full condition of our baby. These other set of doctors were making my life a living hell. I've cried so many times, stressed. They were taking the joy and happiness out of expecting your first.

I switched medical insurances (as my obgyn told me to do, because everyone is claiming they have to do things a certain way, because the policy of my current insurance). I don't know what happened or who talked to who, but the Seattle hospital had called me a few days ago to make an appointment to finally see them.

I'm seeing them in a few hours, so I should probably go to bed now. I hope it goes well.. If they turn me away after all of this and the time and effort to drive 45 minutes to see them, I am going to blow my effing top. I might strangle the person that gives me any bad news. Ughhh.. We'll see how this goes. 

Anyways, I'm going to try to keep positive and happy for baby boy! I cannot wait to finally hold him and tell him he's worth everything I've ever gone through and how perfect he is. <3    

 Kisses for my baby boy! 
&&& THESE are the pictures I took at 23 weeks that I THOUGH I made a blog post about, but I guess I didn't. :) LOL, not TOO much has changed in 3 weeks, but I still thought I'd share. Don't mind my crazy hair, I had just gotten out of the shower and was getting ready for bedtime. 
Okay, good night!!! I have to force 
myself to sleepppp! 

36 comments:

  1. I didnt' even read the post yet, but I just had to say first..
    OMG it's so late, you should be sleeping! Lol
    We should both be sleeping, haha.
    <3

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  2. omg the process you went through is crazy!!1 damn those doctors. I hope you are well,take care! btw cute baby bump! :D

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  3. I think the pictures of your baby bump are beautiful. I really like the part with the tattoo showing. I've to google lupus to help me understand what you're going through and it sounds like a really complicated disorder. Stay happy and positive!

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  4. My goodness you're really strong to endure your pregnancy while being diagnosed with Lupus, I can't imagine seeing that many doctors. But most of all congrats on your little boy Ethan, you're literally glowing in your update photos :)

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  5. Whoa Jen! I cannot even imagine what you've gone through with this illness. You've been amaszing! I notice that people who has gone through a difficult trial usually react in two ways: become a positive person, or a negative one. Not really somewhere in between. I'm glad that you chose the positive!
    You go, girl! And I'll be saying a prayer tonite for you and the baby.

    LeeAnne, Style N Season
    http://stylenseason.blogspot.com

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  6. Hope everything gets sorted out doctor wise soon! your blooming though!

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  7. When I read the "my story" section of that tattoo post you did, I thought about lupus. But of course I wasn't going to ask you about it - I figuring that you'd let us know what it was when you felt like addressing it. Then when I read rheumatologist in the very beginning of this post I knew it had to be lupus. My cousin has it and is in the process of trying to get it under control. She struggles with it, so I guess when I was reading through the post I thought of her.

    I hope the appointment went well. I can't believe all the hoops you have to jump through - or well I can believe it because I know how the process can be, but I think it's ridiculous!

    I can't wait for more baby bump pictures and updates. I LOVE em!! ;D


    <3,
    Dana

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  8. You always seem such a funny, upbeat person, how do you do it with all of this stress, I hope you're holding together. They sound like utter idiots they can't even do their job properly. I'm glad you're getting seen, hope it goes well, you're so amazing you're going to be a great mum to little Ethan, such a lovely name. Really sweet what you put about holding him and telling him he is worth everything you've been through you make me well up girl.x
    p.s. my stomach looks like that after a mcdonalds ;) x

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  9. Jen, you are one of the strongest women I know! I cannot imagine going through what you went through and still the stress you are dealing with because of the clinics and referral crap! UGH I've gone through that one, by the time you get in the baby will be due! geez lol I cannot wait to see little Ethan! You are looking gorgeous as ever and the tattoo still looks amazing! Love you Jen, stay positive! :)

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  10. Ahww your such a pretty mom ^^ Your so strong for having to deal with all that and still are such a lovely person! :O I wish you a lot of goodluck for the future ^^

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  11. Awwww cute baby bump
    Its horrible the doctors put you through all that I hope everything works out!
    Your so strong and lovely Xx

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  12. I really do hope everything falls through fine with nothing but good news. and that baby and you will come out of labor happy and healthy. i'm rooting on you two. :))

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  13. i hope everything goes well with you and the baby boy Ethan 태양~!
    you look so beautiful. :)

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  14. omg, congratulations! I hope you will hear good news tomorrow =) I wouldn't know what to do if I was in your situation, I'd probably go so crazy and just want abortion, but my mom would kill me. I am 18 weeks pregnant! >.< good luck on your new arrivals! ;DD

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  15. Omg.. I didn't know that :'( i hope you're alright. I love you :) My friend was diagnosed with lupus a year or two ago & she never told any of us until August at my friend's birthday party. I can't imagine what you're going through & had to go through but I'm here for you! :D *end of typical sympathetic comment* Omg, 26 weeks and you still so skinny -_____-" damn girl, you still look hot with that baby bump ;) That is one awesome tattoo btw! What exactly is it & what does it represent? O___O

    P.s. does your camera have a move-able screen? XD Tempted to buy one just for that reason.. lol

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  16. You've gone through a lot Jen! Thanks for sharing your story and experiences. I love the name Ethan and when he arrives, it will all be worth it. I'm very happy for you. Hope you have a great weekend.
    ((HUG))
    http://sassyuptownchic.blogspot.com/

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  17. Hey darling! Im not suppose to be blogging but I am hahaha we're both so bad! OMG Look at that baby! It's a miracle what a womans body can do right?! Are you using any sort of special cream for your tummy? My mom used to always stress that with me -.- Omg I can't believe you had to go through all that just to get an appointment!!! WTF! Reading about it made me mad, especially when you pointed out that the baby would've popped out by then already! I mean ,can't those people count?! Geez, you think that someone working in the health industry would be more familiar with these things!

    Anywyas, happy thoughts! The camera is shooting really nice photos for you! Of course your gorgeous as always and I noticed you changed your display profile photo, you look hot! You're going to be one of those hot mamas every girl wants to be hahahahahha! As for the nex5 it's taking great photos, whenever the photos don't come out good is usually because of my, the photographer LOL I wanted something better than a regular compact camera but nothing too hardcore like a real full dslr =D

    HAHAHAHA! I think that's such a funny and cute joke you have between you and your hubby about the camera! For now, my bf wants two kids and I only want one and I want a boy while he wnats a girl. Funny thing is that we can't even choose, but he did say he'd be said and super stressed if he got TWO girls LOL I told him I might have to jump off a bridge if that happened -.- Omg you should totally ask for boobies!!! =D Every time I tell my bf that he tells me to stop being so materialistic hahahaha funny thing is that we're both "materialistic people" lol I love how we understand each others "materialistic" side too, it's not everyone that I can tell I want a baby BOY and boobies, expensive things etc. =D! Oh and I don't have twitter! Until one day ago I didn't have an andriod phone! haha yeah I live in the prehistoric times when it comes to electronics but I just got an iphone4 the other day! =DDD Hope you're doing well and your baby keeps kicking strong!!!

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  18. Hi, the amount of times you have to get rescheduled and get a referall and all that nonsense is so wrong! Aww the name of the baby is so cute!! Hope everything goes well with the doctor!! I would be mad with you if they give you bad news! >_<

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  19. I had a friend who also had lupus and is doing just fine now, but telling my cousin "a" friend, doesn't make her too optimistic. So if I can tell her about you and how you're even pregnant and all, I'm sure it'll help shed more light at the end of that dark tunnel she's sort of in. It's just been really hard on her just in every aspect, not just physically, emotionally, or mentally, but also socially. I'm just praying for the day that things will start to turn around for her.
    I wont' see her for awhile (Thanksgiving) but I'll relay the message and maybe you'll hear from her in a month or so.
    Thanks Jen :]


    <3,
    Dana

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  20. nice photos (; , hope you keep strong ^^
    even pregnant and still staying very pretty (:

    CMPang x
    http://maisecrets.blogspot.com/

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  21. hey Jen :D

    There must have been a problem with my computer, so sorry for the inconvenience. I followed you already :D Thanks for entering me in to the giveaway :D And thank you so much for informing me :)

    xoxo
    Lizzy

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  22. Making a pregnant woman suffer.. that's unbelievable and cruel!!

    I hope everything goes well with your pregnancy sweet lady!! *fingers crossed* xxx

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  23. The health care system can be so difficult to navigate. Best of luuuuck!

    I'm so surprised that you tattoo is still perfectly in place. I've always been told to watch out for that.

    I have a lot of planners in my drawers too... but they're all used.

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  24. Great!
    fleyless.blogspot.com < welcome!

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  25. You look gorgeous! I hope everything goes well with the pregnancy and I think you'll be a fantastic mom! I look really forward to read more posts about your pregnancy progressing! :)

    Taeyang? Ahahahahahahahaha, that's hilarious. If you post pictures of your son later, I am going to have "Wedding Dress" playing in my head.

    Good luck with the pregnancy Jen!

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  26. wow how exciting!! you glow beautifully ^^

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  27. You're still sexy even you got your big baby bump ^_^

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  28. you still look gorgeous in your 26 weeks of pregnancy, goodluck girl, you can make it!:)A new follower by the way and shared some blog award with you:) God bless you :)

    http://aimee0610my.blogspot.com/2011/11/tsubaki-shining-hair-mask-reviews-blog.html

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  29. aaw your bump is so cute I miss being pregnant now! LOL.
    Your tattoo still looks gorgeous!

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  30. Yeey that's really an amazing present! ^^

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  31. My Mother-In-Law has lupus and like you say every case is completely different, she successfully bared children and is doing fine with her treatment. I'm a new follower and usually I skim through older post to see what the person I'm following is all about. I like your blog and your kickass personality congrats on the new addition and your anniversary, my 2 year is on the 28 =)

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  32. Aw, thanks, love! You're very sweet. I know a couple girls that have it as well. As long as you take good care of yourself, we can live a completely healthy and normal life. I'm following back now! And happy anniversary in 3 days!!!!!!! :DDDDD Can't wait to see more posts from you!

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  33. no stretch marks at all, you're so lucky ;--;

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  34. Haha, :P We'll see.. It might change when baby starts getting crazy bigger! :D Haha~

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